Dementia Seizure Evaluation Framework
Seizures in dementia can look like a blank stare, a sudden behavioral episode, or confusion that seems to come from nowhere. The Dementia Seizure Evaluation Framework (DSEF) helps you organize what you observed and compare the pattern with published dementia-seizure research. You receive a visual, evidence-supported report with separate Research Match and Concern & Timing findings, Dementia Seizure Spectrum™ (DSS) domain mapping, SeizureSafe™ guidance, and linked references. Free. Available in your browser.
Built on peer-reviewed evidence from my doctoral research: Seizure Risk Assessment in Dementia: A Literature Review of Current Evidence and Recommendations for Future Clinical Research.
The public DSEF demonstrates the framework for individual use. A licensed implementation extends the same rules-based evaluation backbone across staff education, repeat evaluations, program oversight, and organization-specific workflows.
Memory care & long-term care · Clinical education · Health technology · Research & life sciences
Open access for families, caregivers, staff, clinicians, and anyone seeking a structured way to organize observations.
Licensed capabilities are selected and configured around the setting, users, privacy requirements, and intended use. Options can include:
Both free routes work through the same evidence base — 44 research-supported indicators across the four domains of the Dementia Seizure Spectrum plus sleep and night-time patterns, and 15 questions about how episodes unfold, returning a visual, evidence-supported report you can bring to a physician or share with care staff.
Open in any browser. No account, no install, no cost.
Works on any phone, in any country, anywhere WhatsApp reaches.
The browser version returns one cohesive, visual report. It shows what the framework found, what shaped the findings, and how the observations connect to the next steps—without reducing the result to a single score.
Synthetic example. No real person or identifying information is represented.
Research Match shows how closely the reported pattern resembles published findings. Concern and Timing shows how promptly the pattern may need to be acted on or shared.
Selected observations are mapped across the four Dementia Seizure Spectrum™ (DSS) domains, with a plain-language explanation of why each one matters.
Episode timing, recurrence, recovery, sleep, background history, and medication context are organized alongside the observations.
The report connects the findings to Recognize, Respond, Document, and Advocate, including safety priorities and what to record.
Supporting publications are named with clickable DOI or PubMed links. The complete report can be saved as PDF or downloaded as HTML or TXT.
License the same rules-based evaluation backbone, then configure the delivery layer for your staff, workflow, reporting, analysis, training, and technology environment.
The evaluation is built on the same clinical taxonomy as the rest of the knowledge base — the presentations standard care most often misses. Alongside the four domains it asks about sleep and night-time patterns, background history and medications, and how episodes begin, unfold, and resolve.
The recognized presentations — including those that don't look like textbook seizures.
Read the domain →Automatisms and repetitive motor behaviors mistaken for restlessness or agitation.
Read the domain →Staring, blank spells, and episodes of unresponsiveness often attributed to dementia progression.
Read the domain →Sudden behavioral surges and post-episode confusion misattributed to psychiatric cause.
Read the domain →Anonymous — the evaluation collects no names, no contact information, and no identifying details of any kind. You are never asked who you are or who the evaluation is about. What is recorded is the anonymous clinical picture: dementia type and stage, age at onset, the indicators you flag, and how episodes unfold. That anonymized record is used for two purposes: to generate your visual, evidence-supported report, and to contribute to ongoing research into how seizure presentations in dementia are recognized in real-world settings. Nothing you submit can be traced back to you or to any individual.
Not a diagnosis. Not a validated clinical instrument. Not a medical record. Not a substitute for clinical judgment, neurological evaluation, or a conversation with a qualified professional. Use it to recognize and inform — not to conclude.
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